Hello! My name is Heidi Good Swiacki. I have been married to Steve for 25 years, which has been filled with laughter, trust and love. We have 2 great kids, Ashton 22 and Chris 16. I have ALS, aka Lou Gehrigs Disease. I was officially diagnosed March '05, I was just turning 45. This blog will be about a myriad of topics. I will share my ALS story which will hopefully encourage others. It will show that quality of life comes in many forms. I have to tell you up front that there will be some spiritual references. Don't be afraid or turned off by that. Since I have had ALS I have seen many miracles. Let's be realistic, who can be a happy, non-verbal,ventilated quadriplegic without Faith? I hope you will join me and make this an interesting, educational, inspirational forum. Humor and the ability to enjoy life is required! :)
Heidi passed away 3-25-13 :(
August 4, 2013
Hello, Steve here. To help with the healing process, I am going to continue on with Heidi's blog, primarily talking about our lives and how we as a family are learning to live on with Heidi's memories pushing us forward. Topics covered will be geared towards the affects ALS has on loved ones.
Steve I wanted to let you know how inspiring and helpful you and Heidi's blogs have been for me these past few days. I was searching for comfort and stories of hope online to help me cope with my life set back. I now hug my daughter more, let my family and friends know I appreciate them and I am thankful and grateful for life. I even thought about taking medication to help but after Heidi's advice I decided against it. Because of the honesty of both your words I have been actively changing my attitude and outlook. You and Heidi became a source of strength through your blog and I just wanted to say thank you.
ReplyDeleteLinda, thank you for reading. I need to make sure as we come out the bright end of the tunnel that this means something. One day at a time, one foot in front of the other when it gets hard. Appreciate the little things more. One thing I learned, when you are grinding on bad thoughts, just say stop-it to yourself. Google Bob Newhart, stop it if you want to laugh. Cheers
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