Hello! My name is Heidi Good Swiacki. I have been married to Steve for 25 years, which has been filled with laughter, trust and love. We have 2 great kids, Ashton 22 and Chris 16. I have ALS, aka Lou Gehrigs Disease. I was officially diagnosed March '05, I was just turning 45. This blog will be about a myriad of topics. I will share my ALS story which will hopefully encourage others. It will show that quality of life comes in many forms. I have to tell you up front that there will be some spiritual references. Don't be afraid or turned off by that. Since I have had ALS I have seen many miracles. Let's be realistic, who can be a happy, non-verbal,ventilated quadriplegic without Faith? I hope you will join me and make this an interesting, educational, inspirational forum. Humor and the ability to enjoy life is required! :)
Heidi passed away 3-25-13 :(
August 4, 2013
Hello, Steve here. To help with the healing process, I am going to continue on with Heidi's blog, primarily talking about our lives and how we as a family are learning to live on with Heidi's memories pushing us forward. Topics covered will be geared towards the affects ALS has on loved ones.
Sunday, December 11, 2011
This proved to work out well. Lynne brought me files, etc. daily, I used software , Gotomypc, that allowed me to run my office computer as if I was sitting at my desk. Absolutely amazing! A little unsettling if you happened to be in my office and see my computer working by itself.
My body was behaving consistently, a new area weakening every 3 months with cramps and involuntary muscle spasms preceeding. What a wonderful feature of ALS, no pain and a warning system that allows you to prepare for the next change. I started using Dragon Software which gave me the ability to use my voice instead of my hands. Most Smart Phones can get the Dragon app now, but then I felt very cutting edge. I used my right hand to move the mouse. As that arm weakened I found a hands - free mouse by SmartNav. This is an optical device that is placed on top of the computer screen. It has a built-in infared. A receiver in the form of a self sticking small grey dot. I wore this on the nose rim of my glasses. It will stick on a hat, your forehead, pretty much anything as long as it lines up with the device. This system worked incredibly well as long as you have a voice .