Hello! My name is Heidi Good Swiacki. I have been married to Steve for 25 years, which has been filled with laughter, trust and love. We have 2 great kids, Ashton 22 and Chris 16. I have ALS, aka Lou Gehrigs Disease. I was officially diagnosed March '05, I was just turning 45. This blog will be about a myriad of topics. I will share my ALS story which will hopefully encourage others. It will show that quality of life comes in many forms. I have to tell you up front that there will be some spiritual references. Don't be afraid or turned off by that. Since I have had ALS I have seen many miracles. Let's be realistic, who can be a happy, non-verbal,ventilated quadriplegic without Faith? I hope you will join me and make this an interesting, educational, inspirational forum. Humor and the ability to enjoy life is required! :)


Heidi passed away 3-25-13 :(


August 4, 2013

Hello, Steve here. To help with the healing process, I am going to continue on with Heidi's blog, primarily talking about our lives and how we as a family are learning to live on with Heidi's memories pushing us forward. Topics covered will be geared towards the affects ALS has on loved ones.

Wednesday, February 10, 2016

Trial update 2-10-16



Heidi, here I go again, no last post just yet. Your trial is coming to an end, but at what cost?

There will be no winners in the end, just loss and the feeling of complete helplessness.

Christopher was on the stand for 5 hours .  Heidi you would have been proud of him, Chris maintained his composure and respect of the individuals who really did not treat him with the same respect.

Ashton was on the stand for 1.5 days, she is stronger than Chris and I combined and so much like you.

I testified for 2.5 days, this was as hard as the day we lost you.

Our relationship was built upon love and trust, we argued and had disagreements just like any couple would. We used e-mail to communicate our frustrations and thoughts from that moment in time. You were unable to talk, so we had no other way to really communicate our feelings. We were both very open and wrote what was on our minds. The defense tried to portray/paint our relationship as one that was not real.

Just like any successful relationship, we said what we said and we made up. This making our relationship stronger.  There should have been no misrepresentation  made of our relationship. There is no way anyone could comprehend our lives in dealing with this horrible disease. Given what we endured, I still feel we were stronger than most couples

Our justice system is flawed in its treatment of "witness's" who are called upon to testify. All human etiquette is thrown out the window, as the lawyers are able to badger, make accusations and have all means afforded to them to try and paint you as a person you are not. They are able to grandstand and yell  at you on the stand, ask the same question over and over, all in an effort to frustrate and or upset you to solicit a negative response out of anger. They ask leading yes or no questions, all in an effort to make you out as a person you are not.

Sweetie, there will be no winners at the end of your trial, if they are convicted it does not bring you back, you are still in heaven, if they are acquitted of any charges you are still in heaven but we are left with the burden of what really happened that day.



This sum's up our relationship

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