Hello! My name is Heidi Good Swiacki. I have been married to Steve for 25 years, which has been filled with laughter, trust and love. We have 2 great kids, Ashton 22 and Chris 16. I have ALS, aka Lou Gehrigs Disease. I was officially diagnosed March '05, I was just turning 45. This blog will be about a myriad of topics. I will share my ALS story which will hopefully encourage others. It will show that quality of life comes in many forms. I have to tell you up front that there will be some spiritual references. Don't be afraid or turned off by that. Since I have had ALS I have seen many miracles. Let's be realistic, who can be a happy, non-verbal,ventilated quadriplegic without Faith? I hope you will join me and make this an interesting, educational, inspirational forum. Humor and the ability to enjoy life is required! :)

Heidi passed away 3-25-13 :(

August 4, 2013

Hello, Steve here. To help with the healing process, I am going to continue on with Heidi's blog, primarily talking about our lives and how we as a family are learning to live on with Heidi's memories pushing us forward. Topics covered will be geared towards the affects ALS has on loved ones.

Tuesday, March 25, 2014

March 25, 2014

Heidi, It has been over a year since we last saw your smile and felt the warmth only a mother can provide. We miss you terribly and wish we could hear your sexy synthesized computer voice telling us you love us just one more time 


  1. God I miss you so badly. The tears come at the most unexpected moments. I still see your smile when I walk into our room. My love forever, Steve

  2. I was so sorry to learn of Heidi's passing. I only met her once, when she came to our support group. But she made a powerful impact on me, with her optimistic attitude and her love of life. We communicated by email, and she was a source of practical advice as well as comfort. I will deeply miss her. My condolences to her family and friends. What a lovely tribute video.

  3. Heidi, the emptiness is suffocating. I miss you and wish the things that have happened to our family since you left were over and done with I love you,

  4. Miss you dear friend and loved being able to come here and see all these pictures of you and the happy and special times you had...

  5. Its been 8 mos. I miss you, we found a blanket that smelled like you this past weekend. We all covered our faces and cried once we put it down. We had a great life together sweetie