Hello! My name is Heidi Good Swiacki. I have been married to Steve for 25 years, which has been filled with laughter, trust and love. We have 2 great kids, Ashton 22 and Chris 16. I have ALS, aka Lou Gehrigs Disease. I was officially diagnosed March '05, I was just turning 45. This blog will be about a myriad of topics. I will share my ALS story which will hopefully encourage others. It will show that quality of life comes in many forms. I have to tell you up front that there will be some spiritual references. Don't be afraid or turned off by that. Since I have had ALS I have seen many miracles. Let's be realistic, who can be a happy, non-verbal,ventilated quadriplegic without Faith? I hope you will join me and make this an interesting, educational, inspirational forum. Humor and the ability to enjoy life is required! :)

Heidi passed away 3-25-13 :(

August 4, 2013

Hello, Steve here. To help with the healing process, I am going to continue on with Heidi's blog, primarily talking about our lives and how we as a family are learning to live on with Heidi's memories pushing us forward. Topics covered will be geared towards the affects ALS has on loved ones.

Sunday, September 25, 2011

Hello world!

At the request of many I FINALLY have entered the world of BLOG. Thanks to my computer savvy and beautiful cousin Joan. I expect this to be information about my adventure with ALS and will hopefully be a source of information and inspiration. Please ask questions and give me suggestions. I look forward to the future with you.

Joan and me


  1. Hi Heidi! Congrats on your new uber-cool blog! I'm following it and will check in now and then to see what's new... you are one of those truly inspirational people that come along once in a great while. Can't wait to see your next post.

    Your OTHER beautiful cousin, Cristy

  2. Mom!!! This is something amazing!!! I will have ur words for ever (even though they are already strong in my heart)

    Love you so so so much!

  3. I'm so excited you are doing this Heidi! Looking forward to reading each and every post!!

  4. write about first symptoms, progression and adaptations in your life

  5. Heidi - It's so great to see you doing this blog. You have a fantastic writing style, and I look forward to more posts from you. This blog will impact more people than you can even imagine! God bless, Leslie Sherman

  6. Heidi,
    Great job on your blog. We look forward to reading and following your story. You are a writer now, along with all your other talents and titles! Julie and Bob

  7. Heidi - I certainly look forward to your posts - thanks so much for sharing - your words, your strength, your insight - have truly impacted me!
    God is Good!

    Audrey Dragavon Smedley

    PS - I've had a heck of a time trying to figure out how to leave this post for you (I am not technically savvy!)