Hello! My name is Heidi Good Swiacki. I have been married to Steve for 25 years, which has been filled with laughter, trust and love. We have 2 great kids, Ashton 22 and Chris 16. I have ALS, aka Lou Gehrigs Disease. I was officially diagnosed March '05, I was just turning 45. This blog will be about a myriad of topics. I will share my ALS story which will hopefully encourage others. It will show that quality of life comes in many forms. I have to tell you up front that there will be some spiritual references. Don't be afraid or turned off by that. Since I have had ALS I have seen many miracles. Let's be realistic, who can be a happy, non-verbal,ventilated quadriplegic without Faith? I hope you will join me and make this an interesting, educational, inspirational forum. Humor and the ability to enjoy life is required! :)
Heidi passed away 3-25-13 :(
August 4, 2013
Hello, Steve here. To help with the healing process, I am going to continue on with Heidi's blog, primarily talking about our lives and how we as a family are learning to live on with Heidi's memories pushing us forward. Topics covered will be geared towards the affects ALS has on loved ones.
Heidi, it will be 2 years today that you took your last breath. It is so hard to believe that we have been without you this long. I have said this with every blog, it is harder to understand the mystery behind your death. I think back to 2:30 in the afternoon on 2013 when Chris called me crying to tell me you were dead. Our lives changed forever that day and set in motion a series of events that are still going. The investigation into your death. I am still in shock over what transpired that day and the following day when the police forcibly removed us from our home to preserve evidence.
On the 2 year anniversary of your passing, I had hoped we would be remembering the happier times when we were lucky enough to have you as our rock, but it is tainted by the investigation. It is tainted that the kids want nothing to do with your mother. She was such an important part of our lives as the kids grew, what happened? It is such a shame, she should be with us today.
To remember you, we are going to your favorite beach today to spread some of your ashes. I think we are going to go to the places you enjoyed most each year. Next year will be Boston.
